Kalisha's iPhone |
One of the things she must do is get up and be ready on her volunteer days; actually she has to do this for any 'commitment' she has made. She volunteers at the Share House on Tuesdays, the food bank on Wednesdays, and goes to a cooking class on Fridays.
She hates to get up in the morning. It has become more and more of a struggle with each passing week. She has every excuse under the sun....It's too cold, I don't want to learn how to cook, I already know how to buy groceries, I don't want to push grocery carts out, I'm s-o-o-o-o tired. I encourage her to go to sleep earlier at night. She needs some white noise when she sleeps. I understand that, so she is allowed to have a radio or CD playing, but she always has her TV on and then never falls asleep.
I, quite frankly, am getting pretty sick of the whole thing. I can't just let her sit at home 7 days a week and sleep most of the time; therefore, she needs to go to these volunteer jobs. Once she gets there, she enjoys her work and the people all like her. There are supports in place; people don't yell at her, she is accepted, she is given tasks she can handle, etc.
I think the time frame for losing the phone may have to be increased to 48 hours because she seems to have become immune to the loss for just a day. I will probably have to take the laptop out of her room too, so she can't get on FB from there either. What a pain it all is. Yes, I am being selfish. It is a pain because it is more work for me to take it all away. I just want to tell her, "Just get up and go. You can sleep later when you get home." Actually, I do tell her that, but when she is in Kalisha Mode, there is no reasoning with her.
Another reason she is so tired is because she never reaches a 'deep sleep' due to sleep apnea. If you want to read about our experience with the apnea testing, go back to a post from a year or so ago.
I think I need to take a nap, so I can stop thinking about this for a while.
On the good side of things, I have (accidentally, but by God's design) found someone who is very good at blog and web design. She has re-designed this entire blog site, but to get it all done, she needs to close the site down on Thursday for a few days. I am so excited!!
You are pretty amazing stand your ground
ReplyDeleteAmy, I'm not so amazing, but thank you for the compliment. At least with Kalisha, I always know the anger will pass and she will feel bad and tell me she is sorry and always asks for forgiveness. She is such a "think in this moment" kind of girl; it comes with autism. Never look at the future consequences. She knows she wouldn't last a day at her dad's, but right at that moment, that was her solution. Thanks for the comment. Come back and visit again.
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